About the RCGR
Welcome to the Rare Cancer Genetics Registry (RCGR).
The mission of the RCGR was to create a registry of participants willing to participate in research studies, and an accompanying DNA bank for genetics research. The RCGR, which is funded by the National Institutes of Health, is a resource for recruitment, planning, and coordination of studies on rare cancers. The RCGR recruited participants with these rare cancers:
- Head/neck cancer (diagnosed before age 40)
- Renal cancer
- Esophageal cancer
- Gastric cancer
- Pancreatic cancer
- Testicular cancer
- Fallopian tube cancer
- Chronic lymphocytic leukemia
- Lymphoma (low grade)
- Adenoid cystic carcinoma
- Biliary tract cancer
- Thymic cancer
The RCGR is a resource for investigators and provides the following:
- Centralized DNA and tumor tissue bank
- Database with registrants’ clinical and self-reported information
- Clinical data on diagnosis, treatment, and outcomes, extracted from medical records
- Self-reported family cancer history, risk factors, and genetic test results
The RCGR Principal Investigator is Dr. Dianne M. Finkelstein, Ph.D., at Masschusetts General Hospital / Harvard University.
Contact the RCGR
If you have any questions about the RCGR, you can contact the MGH Coördinating Center by sending email to firstname.lastname@example.org, or by calling 617-724-3000 (please ask for the RCGR).